In Triage Cancer's free Quick Guide to Understanding Hospice Care, you'll learn about the difference between hospice and palliative care , who qualifies for hospice care , what services are included , how hospice care is covered by health insurance , how to find a program , and more.
After a cancer diagnosis, people should be able to make decisions about care and treatment that meet their needs and honor their values. This is the case even when someone is nearing the end of their life. There may still be different options for care and treatment to explore, even if someone decides they are no longer trying to cure their medical condition. One of these options is hospice care. Sometimes, people confuse hospice care and palliative care. Palliative care is an important part of hospice care, but it isn’t the same thing. This Quick Guide explains what hospice care is and how it is paid for.
Hospice is a comprehensive, holistic program of care and support for terminally ill patients and their families. Its focus is making a patient comfortable, providing pain relief, and managing symptoms, rather than curing the patient’s illness. Hospice is sometimes confused with palliative care. Palliative care focuses on providing pain relief and managing symptoms for people with serious medical conditions. Sometimes those medical conditions are life-threatening, but not always. Sometimes palliative care may be provided together with care aimed at curing a medical condition. Palliative care can also be provided during hospice care.
To qualify for hospice care, a patient’s doctor must indicate that they are expected to die within six months, if their illness follows its natural course. This does not mean that hospice will be limited to six months. As long as a doctor re- certifies that the patient’s illness remains life-limiting and is expected to result in death within six months, a person can stay in hospice care. Someone who has entered hospice care is not required to remain in hospice care if they change their mind and decide they want to resume treatment to cure their medical condition.
The goal of hospice is to keep the patient free from symptoms and pain for as long as possible, while providing emotional support to the patient and their family. Hospice care may include:
The hospice care team is a family-centered team of professionals, including doctors, nurses, social workers, counselors, chaplains, home health aides, and volunteers. The team coordinates and supervises care 24 hours a day, 7 days a week.
Hospice care is most often offered at home, for the comfort of the patient and their family. Supplies, including hospital beds and medicine, will be brought directly into the home. But hospice care can also be offered at an assisted living residence, skilled nursing facility, or in another setting. There also may be times when a patient temporarily needs to be in a hospital or inpatient hospice center. The home hospice team can arrange for inpatient care and will stay involved in the care and with the family.
Patients and families should contact the insurance plan to learn about coverage. Details vary from plan to plan.You can find a hospice program by asking people you know, by talking to members of your health care team, or by doing online research. The American Cancer Society provides tips for what to look for in a hospice program . You may be able to find a referral through the National Hospice and Palliative Care Organization or the National Association for Home Care and Hospice .
Finding a hospice program can take time. So, it can be helpful to try to find a program while the patient is still able to participate in the selection process. People can express their preferences about hospice as part of their advance health care directives , physician’s/medical orders for life-sustaining treatment (POLST or MOLST forms), or related medical documents.
Last updated: 02/2023
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